MS

Written by cycleguy on July 24th, 2018

No, I am not writing this post to announce that I have MS. It is an announcement…an announcement of a different kind. It is actually an announcement welding together two parts of my life-one a passion; one a concern.

Anyone who knows me knows of my passion. Hint: take a look at my header. I have a two-headed passion. No, I am not two-headed. 🙂 I am a cyclist and I heavily support 3 Feet Please.

But I also have a concern, made more important because I have some friends who are sufferers. MS or Multiple Sclerosis. Marge is a vital part of OVCF, the church I pastor. Marge is involved in our worship team; her husband, Ray, is the primary “runner” of our soundboard. I have grown to love them both. Marge was diagnosed in 2000 with MS and was told it would be just months before she would be in a nursing home and to get a wheelchair. She refused to then; she still refuses to. She recently changed to a much less stressful job so that should help even more.  Her MS flares up upon occasion which makes it difficult for balance, but other than that no one would know.

Kirby Stogsdill is a well-known individual in our community. I’ve come to know Kirby through my involvement with the community in various ways. His two children graduated from Owen Valley with some of the kids from OVCF. Kirby and his family attend the local Methodist church in town. Super nice guy. I noticed him having trouble walking one day and a few days later I saw his daughter and asked her if her dad was okay. She said, “It is just his MS.” Well, knock me over with a feather. He was diagnosed in 2006 (shortly after I moved here and before I knew him). Every 6 months he receives an infusion (basically chemo he said) to hold his MS at bay.

On September 8th I am molding my passion for cycling and 3 Feet Please with my love for Marge and Kirby and others like them to take part in the MS150 ride in Lebanon, IN. Dave (from 3 Feet Please) and I formed a team…oddly enough 3 Feet Please…to ride in the MS150. He is making the trip from Arizona to do so.  A young lady, Cassie, who is Marge’s daughter, has also signed up to ride with us.

HERE IS WHERE YOU COME IN!  The team has committed $600 and we have already reached that goal. I have committed to raise $300 and am 1/3 there. I would be honored if you would donate to MS in my name. Here’s how you do it. Go to the MS150 site. Go to the Donate tab and type in my name: Bill Grandi. It will show you my name and click on View. Yeah…you get a picture of me and Dave. I’m the good looking one. 🙂 Above the picture is DONATE TO BILL. Click there and follow the directions. And just to be clear: I receive nothing from this except the satisfaction of riding for a good cause. All donations go to MS Research.

Marge says thanks. Kirby says thanks. All the MS folks say thanks. And I say thanks. I’d like to blow the lid off the donation box. (Note: I received permission from both Marge and Kirby to share their story).

 

10 Comments so far ↓

  1. Lisa notes says:

    What a wonderful gift you are giving your friends, Bill! I remember my mom used to play Scrabble every week with a friend who had MS. It was a beautiful example for me to see. (And to learn how to play Scrabble; they were fierce competitors.)

    • cycleguy says:

      I used to play Scrabble with one of the older ladies in one of the churches I pastored. She played a cutthroat brand of Scrabble. 🙂

  2. Done!
    Blessings, Bill!

  3. Betty Draper says:

    I would like to add my daughters name to those you pray for concerning MS. She will be undergoing some test at Mayo Clinic soon and that is one of the diseases she could having causing the issues with her speech. My mother had a hereditary in the family of MS so it is possible that Tara has it too. but they are also looking at small vessel disease, and mini strokes. She had a couple of times when they lived overseas and then in the last few years. Each times she was under a lot of stress. but the MS keeps coming up with each test and doctor. We are in Mn right now with her and the family, having a wonderful time despite the concerns. Good for you and your cycle mates for doing the ride, brings awareness and I pray lots of money.

  4. Amanda McCullough says:

    Bill
    Let me say first how much you are loved for the person you are.. You were one of my first pastors and a memorable one at that. Who knew when I met you 27ish years ago that I would be one of those who fight a daily battle with RRMS. (Relapsing Remitting Multiple Sclerosis). 18 1/2 years after diagnosis I am still walking on my own and I have a high stress job.. I was raised by a wonderful man who taught me giving up is not an option. It took time but I have chosen to fight this battle by educating others. Only by doing that can we have people say “I forgot you have MS” or my favorite will be the day we say “I once had MS”. Please also remember those who love and care for us… We do not fight this battle alone!.
    God does not give us more then we can handle.
    Bill thank you for helping to bring awareness to this invisible illness.

    • cycleguy says:

      It is so good to hear from you! I had no clue about the RRMS but I applaud you for your desire to not quit. And I applaud your dad for teaching you that. There will be a donation made in your honor on my page. If you are ever in the Spencer area please let me know. Jo & I would love to see you.